Netfuture 92
Part One Part Three Index
Dangers
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But most remarkable of all was Lusseyran's claim that, despite his total
blindness, he learned to see.
Not at once, I admit. Not in the days immediately after the operation.
For at that time I still wanted to use my eyes. I followed their usual
path. I looked in the direction where I was in the habit of seeing
before the accident, and there was anguish, a lack, something like a
void which filled me with what grown-ups call despair.
Finally, one day, and it was not long in coming, I realized that I was
looking in the wrong way. It was as simple as that. I was making
something very like the mistake people make who change their glasses
without adjusting themselves. I was looking too far off, and too much
on the surface of things.
And so he changed course, looking "not at things but at a world closer to
myself, looking from an inner place to one further within, instead of
clinging to the movement of sight towards the world outside."
Immediately, the substance of the universe drew together, redefined and
peopled itself anew. I was aware of a radiance emanating from a place
I knew nothing about, a place which might as well have been outside me
as within. But radiance was there, or, to put it more precisely,
light. It was a fact, for light was there.
Not only light, but also color.
My father and mother, the people I met or ran into in the street, all
had their characteristic color which I had never seen before I went
blind. Yet now this special attribute impressed itself on me as part
of them as definitely as any impression created by a face. Still, the
colors were only a game, while light was my whole reason for being. I
let it rise in me like water in a well, and I rejoiced.
But this inner light sometimes departed. Fear, anger, and impatience were
enough to make Jacques blind again. When he lost his confidence and began
to fear the obstacles in his way, he could no longer move easily among
them. Everything hurt him. "What the loss of my eyes had not
accomplished was brought about by fear".
Perhaps an even greater danger than his own fear lay in the reactions of
others. In his book Lusseyran gives great credit to his parents for not
imagining that their own way of knowing the world was the only one. He
advises parents of a blind child never to say "You can't know that because
you can't see" -- and to say as little as possible, "Don't do that; it's
dangerous". The adult's pity, fear, and embarrassment are the worst
disaster for someone who has been blinded, as one of Lusseyran's
encounters makes clear:
When I was fifteen I spent long afternoons with a blind boy my own age,
one who went blind, I should add, in circumstances very like my own.
Today I have few memories as painful. This boy terrified me. He was
the living image of everything that might have happened to me if I had
not been fortunate, more fortunate than he. For he was really blind.
He had seen nothing since his accident. His faculties were normal, he
could have seen as well as I. But they had kept him from doing so. To
protect him, as they put it, they had cut him off from everything, and
made fun of all his attempts to explain what he felt. In grief and
revenge, he had thrown himself into a brutal solitude. Even his body
lay prostrate in the depths of an armchair. To my horror I saw that he
did not like me.
When we devise technical aids for the disabled, we need to ask ourselves
to what degree our thinking aligns itself with Lusseyran's upbringing or
with that of his unhappy acquaintance. Our attitude in this respect,
after all, is probably much more significant for the person we would help
than is the technical wizardry we put at his disposal.
Attending to the World with New Eyes
------------------------------------
Lusseyran's story presents a mystery for us sighted people, who speak so
naturally of the "night" of blindness. It's not easy to understand what
he means by "seeing". Throughout his book he tells how his freedom of
movement was restricted by his blindness, and how he spent much of his
time guided by friends as he walked -- or ran -- through city and
countryside. But at the same time these friends quickly learned to take
it for granted that, in some ways, he saw more of this passage than they
did, so that he was often at least as quick as they to warn of danger or
to announce what lay over the next rise.
He tells how objects in his environment would come to life on his "inner
canvas", how his senses of hearing, smell, and touch gained revelatory
qualities that departed in wildly unexpected ways from the "normal"
performance of these senses, and how all objects exert a kind of
"pressure" even from a distance -- a pressure one can respond to in an
intimate sensory dance that blurs the visually enforced boundaries
commonly felt between object and perceiver.
As to his "seeing" in particular, here is one of his attempts to describe
it:
As I walked along a country road bordered by trees, I could point to
each one of the trees by the road, even if they were not spaced at
regular intervals. I knew whether the trees were straight and tall,
carrying their brances as a body carries its head, or gathered into
thickets and partly covering the ground around them.
This kind of exercise soon tired me out, I must admit, but it
succeeded. And the fatigue did not come from the trees, from their
number or shape, but from myself. To see them like this I had to hold
myself in a state so far removed from old habits that I could not keep
it up for very long. I had to let the trees come towards me, and not
allow the slightest inclination to move towards them, the smallest wish
to know them, to come between them and me. I could not afford to be
curious or impatient or proud of my accomplishment.
After all, such a state is only what one commonly calls "attention",
but I can testify that when carried to this point it is not easy.
All this may remind some readers of the ancient doctrine that we actually
see by virtue of two lights, one of which, more subtle, streams out from
us, and the other of which streams from without into our eyes. It may
remind others of the findings of twentieth-century studies in perception.
In his book, The Organism, neurologist Kurt Goldstein demonstrated that
the senses (like all other part of the organism) never deliver isolated
and local performances. For example, every visual sense impression
corresponds to a different muscle tension:
If one asks a patient, preferably a cerebellar patient (who exhibits
these phenomena, often exceptionally clearly), to raise his arms
forward so that they are in a somewhat unstable position, and if one
exposes him to various colors (e.g., large sheets of colored paper), we
notice that green and blue stimulation lead to a change of the position
of the arms in the opposite direction as that induced by yellow or red
stimulation.
More generally, color influences our volitional movements, so that,
depending on whether a light is red or green, "movements are carried out
with a different speed" even though the difference is not subjectively
experienced. Likewise,
the estimates of traversed distances vary as to length; seen and felt
distances, time intervals and weights are judged differently under the
influence of different colors.
Goldstein notes that stimulation of the skin by different colors can also
lead to different effects. In sum, "it is probably not a false statement
to say that a specific color stimulation is accompanied by a specific
response pattern of the entire organism." This is even true when the
stimulation does not involve sense objects in the usual sense of the term,
as when infrared or ultraviolet light is experienced.
All this stands to reason. If the organism is a unity, a whole in the
deepest sense, then every effort precisely to define a deficit -- a
missing piece or a missing function -- is problematic. Given a true
organism, you can, to one degree or another, without predefined limit,
arrive at the whole through any of its parts, because the whole is
immanent in each of the parts. All our senses form a unity that can be
gotten at -- with more or less success depending on our inner resources --
through any combination of them.
The Human Being as a Developing Potential
-----------------------------------------
Today we are strongly inclined to technologize every disability,
conceiving it as wholly defined by a specific malfunction of a piece of
machinery, and immediately setting about the task of "fixing" the
malfunction, as if that were the whole story.
What Lusseyran's experience suggests is that this is only a tiny part of
the story -- and perhaps the least important part. By restricting our
notion of "seeing" to the narrowest of mechanisms -- the eyeball
understood as a camera -- we close ourselves off to many of life's richest
possibilities.
Lusseyran himself had little patience for such attitudes. Noting that the
blind suffer greatly "from the inexperience of those who still have their
eyes", he goes on to laud his parents,
whose hearts and intelligence were open to spiritual things, for whom
the world was not composed exclusively of objects that were useful, and
useful always in the same fashion; for whom, above all, it was not
necessarily a curse to be different from other people. Finally, mine
were parents willing to admit that their way of looking at things, the
usual way, was perhaps not the only possible one, and to like my way
and encourage it.
Indeed, as Lusseyran remarks elsewhere, after his accident his father said
to him: "Always tell us when you discover something." What extraordinary
and liberating advice! One of my own sons had experience of synaesthesia
(perception of sound as color) when he was young, and I have often
regretted our not having found a way to make a natural place for such
experiences in the home. In general, I suspect that if the imaginations
and perceptions of childhood -- above all, the perceptions of ensouled
nature that come so naturally to children -- were not systematically
suppressed by adult obtuseness, we would live in a radically different
world today.
A new collection of Lusseyran's essays is just now coming out (see below),
and in its introduction Christopher Bamford mentions a Dutch girl born
deaf. Remarkably, her parents decided to treat her as if she could hear.
So they spoke to her constantly, read stories, sang songs. The girl grew
up to be exceptionally intelligent and happy. And "she speaks clearly,
without the slurring common among the deaf." Today she counsels the
parents of deaf children. She also enjoys music and goes to concerts.
As Bamford observes, "Evidently we hear with more than our ears". In
fact, "the story of the Dutch girl puts in question whether we `hear'
sound in the usual sense at all". His point, if I take him correctly, is
that understanding comes to us along innumerable dimensions, the sum of
which is that one person participates with another "in a world of love and
meaning". To reduce the possibilities of that shared world to the bare
potentials of an imagined set of one-dimensional mechanisms is to lose
sight of nearly everything that counts.
Saving Illnesses
----------------
It is one of the characteristic pathologies of our day that we would like
to deny the connection between limitation and suffering, on the one hand,
and profound accomplishment on the other. But the link remains, and one
particular episode in Lusseyran's autobiography offers a beautiful
illustration of it:
After the Germans invaded France, the young Jacques was struck by what
became of Paris. It was a puzzle he could not solve. Yes, the Germans
were largely invisible, and life went on much as before. Everything
seemed roughly the same. Yet he sensed in everyone's attitude that the
world had somehow shifted catastrophically. He could not help noticing
the tenseness, the withdrawal of his neighbors into their private shells,
the studied silence as one person after another -- especially Jews -- were
summoned by the authorities, never to return.
All this ate away at the teenage boy terribly, like a great societal
illness that could neither be clearly identified nor shaken off. He had
never lived through an Occupation, and did not know what it was "supposed"
to be like. The official story was of the Germans as benefactors. He
could not fit the pieces together.
Then, after the arrest of a friend, Lusseyran fell badly ill with the
measles. At the height of the illness, with fever raging, the situation
suddenly became crystal clear to him. He was gripped by a powerful
resolve. All the while his system was purging itself of poisons -- "but
the poison was moral as much as it was physical, of that I am sure".
Thus was born the iron will and the whirlpool of renewed energy that set
his Resistance activities in motion:
What a fortunate case of measles that was! In me it had catalyzed a
pack of fears and desires, intentions and irritations which had held me
closed in a tight fist for weeks, and which I should never have been
able to break open myself. On the first day of convalescence I said to
myself aloud in my room: "The Occupation is my sickness".
If only we allowed ourselves more such personal crises today as we
confront the deeply embedded, systemic ills of our society! But, as our
readiness to submit ourselves to mass vaccination campaigns for every
minor malady suggests, we can't easily accept that illness might be
necessary and beneficial -- that we might end up paying more in bodily and
social damage for its absence than for its presence.
Accepting such a link is as hard as conceiving that blindness might be a
gift. But on this we should allow the "victims" to speak for themselves.
Lusseyran's own conclusion is direct as can be: "Since I went blind I
have never been unhappy". How do you gainsay a life that could heartily
serve others in the French Resistance and find peace in a concentration
camp?
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